My family needs your prayers!

It’s been very busy around our house adjusting to having ten children! Petra is 6 1/2 months old now. She is beautiful and chubby with a contagious smile that lights up our family. Hopefully I will have time to blog about her soon.

I write this because I believe in the power of prayer. Our son Drake became ill on October 2, 2015. He has never recovered, and his physical and mental state continue to deteriorate.

A month into Drake’s illness, our family was crumbling from stress and worry. I texted this little poem to my oldest daughter after yet another terrible morning. It was a corny way of attempting to reach out to her.

Just Another Morning

Screaming, yelling, threats, pierce my heart.

I refuse to let others see.

Cold tears acknowledge reality.

Smiles hide my empty eyes.

Carry on, my God says to me.

Fight the urge to feel numb.

How will I be okay if he is not?

My family implodes

With constant sadness and anger.

Christ reaches me through Mary’s touch.

Warm, freeing exhale.

Glimpse of peace.

Two mothers embracing.

Blind faith in our All-Knowing God.

Strength for tomorrow’s morning.

Drake has been found to have multiple infections, an autoimmune disease, and an immune system disorder. Insurance (of course) is not wanting to cover the multiple IVIG infusions that will heal his body.

I am in contact with the IVIG company to order an infusion out-0f-pocket because we cannot wait any longer. He is at home, but on IV fluids and medications. My job is to continually call the company, reminding them that we are ordering the IVIG today whether insurance pays or not. It is urgent.

I am sure you can empathize with our exhaustion, frustration, and worry. For weeks I was so angry with God that I had a hard time praying. Instead, I asked the Blessed Mother to pray FOR me. In turn, Mother Mary filled me with peace and hope.

One night as I tried to comfort Drake, who was crying because of pain and nausea, I held him in my arms and massaged his neck. My mind flashed to the image of the Pietà, where Mary holds Jesus in her arms after His crucifixion. I have tasted a glimpse of what Mary felt watching her Son suffer. Like Mary, all I can do is leave the healing up to God.

Now, I’m no Mary, and Drake would attest that he is no Jesus. 🙂 However, he is very, very sick. Could you spare a moment to pray for Drake? He is especially comforted by the Divine Mercy Chaplet (for directions CLICK HERE).

Here is a picture of Drake a couple days ago on his 13th birthday, trying his best to enjoy a milkshake:

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Dear Jesus, we come to you in prayer asking for complete healing of Drake’s body. We know that Drake has a future that is important in bringing others to Christ and glorifying You. Please help the IVIG to heal him. Please convince insurance to cover the multiple infusions that he needs. Whatever happens, we accept that it is in Your hands. Thy will be done. Amen.

***Update:  Our insurance has denied coverage for the IVIG, but we will appeal. Drake will receive his first IVIG on Monday and Tuesday. Praise God that he can begin healing.

For the sake of His sorrowful passion, have mercy on Drake, anyone physically or spiritually sick, and the whole world! Thank you for your prayers!

41 thoughts on “My family needs your prayers!

  1. Jaime, I cannot believe they have not approved the IVIG! What grounds do they have to deny the treatment? I am praying continuously for Drake and you all. Are the IV fluids and meds helping any?

    Liked by 1 person

    • Insufficient documentation for the immune deficiency diagnosis I believe. The financial team with the IVIG company is reviewing the case and will contact our doctor to help appeal. The fluids and meds have helped some, but he is so sick. So he went from us spoon feeding ice chips and not eating a thing to being able to sit and play Wii and watch a movie. He is very ill, though. Praying the IVIG helps quickly.

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      • Will they back-cover anything you purchase out of pocket? I hope so. Your dr. thinks it will take 20+ treatments, though, right, to completely heal him? If you have the drug mfgr on-board I am confident they will find a way for the appeal to be granted. Love to you all!

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      • Jaime, have you considered talking to someone at St Jude? I know Drake does not have cancer or leukemia or HIV or anything like that, but some of the treatments are similar–IVIG, etc. They might be able to help, not sure but something to call about.

        Liked by 1 person

      • I am placing your family in my prayers right now. When your babies hurt we hurt ten times worse. I feel for your child as well. I am on an IViG therapy and use the most compassionate and professional company ever. The name is MedPro Rx. They offer financial waivers in conjunction with your insurance and in most cases there is NO OUT OF POCKET EXPENSE to you or your family. It is really up to our doctor to submit the correct data to your insurance company supporting the need for the medications, however, I would contact Tom Wells at MedPro Rx in North Carolina and ask for guidance. You can tell him I referred you. I have been receiving ivig Infusions every couple of weeks for many years and would never use another company. Please feel free to call me any time. May God bless your son and your family. Like I said I have never had to pay a penny fr my medication in the Infusions.

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  2. He will be in my prayers, along with you and the rest of your family. I’ll pray for the Insurance Company too. Apparently they need an infusion of love.

    *Virginia Lieto, Inspirational Author* *Embrace the virtues to live a happier life!* Download your FREE Virtues Guide at http://virginialieto.com Author of Adventures of Faith, Hope, and Charity – Finding Patience available at http://amzn.to/1POPl6A Find me on Facebook, Twitter, Linked-In, Google +, and Pinterest

    On Fri, Jan 29, 2016 at 3:30 PM, The Fruitful Mama wrote:

    > 9jaime posted: “It’s been very busy around our house adjusting to having > ten children! Petra is 6 1/2 months old now. She is beautiful and chubby > with a contagious smile that lights up our family. Hopefully I will have > time to blog about her soon. I write this because I” >

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  3. SO sorry to hear of all of this! Your family has been suffering for so many months now….what started on my husband’s birthday….which seems like so long ago now…and it was months ago indeed!!!! Oh what a cross……there is nothing harder than to watch your child suffer….and for that length of time is almost unbearable……almost…..I hope he is healed soon…..and remember, you are a wonderful mother…..and your family will be OK…..your poor, sweet boy!!!!

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    • It is the hardest thing to see, but not near as hard as what he is experiencing. God told me many years ago that I would suffer a lot. He said it in a very warm, kind voice. I can only understand it in terms of Him wanting to bring me very close to His heart. I just hope I can handle this all.

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  4. Jamie,
    Drake and your entire family are in our prayers daily and will continue to be so. I’m heartbroken by the insurance company’s decision and trust that the appeal will be successful. Know that you have an entire community praying for Drake and your family and we are here for you all.
    Laurie & Eric & Max

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  5. This hurts my heart to read. I will pray for you and your family. Watching your child be sick is truly one of the worst things one can experience. 😦

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  6. Be assured of our daily prayers for total healing of Drake and coverage by the insurance company. God is Good….ALL THE TIME>>>>>>I believe this and know good will come from these heavy challenges. Sending hugs and love and prayers…”the Werkmeisters”

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  7. Jaime,
    I am Amy Young’s sister and I want you to know that Drake will be added to our church prayer chain immediately. Amy had requested prayer for him back in the fall but I hadn’t spoke with her about him in a while.

    I want to give you some words of encouragement. I have an autoimmune disease that can be quite ugly. Amy can fill you in sometime on the whole nasty mess. I did have IVIG therapy but it didn’t work for me. I did have to take two years of chemotherapy (Rituxan). I do believe there is healing in medicine but I also believe there is healing straight from God, whether through the medication or by Divine intervention. Either way, God is in it. I received a miracle. An angel visited us at Barnes Hospital. There is no other explanation. When the IVIG failed, I felt like I had been failed. Did God fail me? No. Did the physicians fail me? No. It just wasn’t the answer. I don’t know why. What I do know is that there was a plan. It was a plan made especially for me.

    Our insurance denied the drug as well. As a matter of fact, they denied the chemo too. We ended up purchasing a supplement insurance as well as calling the drug manufacturer. There are “insurance” programs that work with Christian families to help bare the burden of a medical expense. They are medical sharing programs. One is run by Samaritian’s Ministries (not to be confused with Samaritian’s Purse). We also contacted the American Cancer Society since the drug is also used for that. We received help from the MDA as well. Many autoimmune diseases fall under their programs. St. Jude even gave us a wealth of information. I would be very much in favor of doing some fundraising for you. There were several benefits held for us and had it not been for those neighbors and friends, some of our bills would have not been paid. We will probably still owe for medical expenses for the rest of our life. I regret it deeply.

    I’m not Catholic. I know nothing of special prayers or saints. What I do know as a Christian is that, regardless of church affiliation, as a saved individual we have an Awesome God who does know all things. He has a plan. Maybe these things have been placed on you and your family because God needs a voice in this arena. Maybe there are doctors and nurses and patients and other families who need to see God. Maybe you are the vessel He has chosen to use for this very purpose. Maybe this is disciple boot camp and you are being prepared for such a time ordained by God.

    I have grasped at many scriptures through the past eight years. I have resorted to writing them out and having someone put them on the walls for me. I had a collection of papers and photos that Jamie stuck to the hospital walls for me during EVERY infusion. I needed to see it…the very words penned by the inspiration from the very Creator of this body that I so desperately needed touched. I’d like to share just a couple from the book of Jeremiah. I pray they find a place to nest in your heart and in your mind. Know your beautiful family are in our prayers.

    And they shall fight against thee; but they shall not prevail against thee; for I am with thee, saith the LORD, to deliver thee.
    Jeremiah 1:19

    Thus saith the LORD, Stand ye in the ways, and see, and ask for the old paths, where is the good way, and walk therein, and ye shall find rest for your souls.
    Jeremiah 6:16

    For I know the thoughts that I think toward you, saith the LORD, thoughts of peace, and not of evil, to give you an expected end.
    Jeremiah 29:11

    Liked by 1 person

  8. Praying for the complete healing of your son! Autoimmunity issues are sometimes improved with dietary changes. My family has had remarkable improvements in mysterious health issues on a gluten free diet. Your family & especially your son will remain in my prayers.

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    • Thank you for your prayers. He has been gluten free for years except for a short trial off the diet a few years ago. Your prayers are very, very appreciated. God bless.

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  9. I am placing your family in my prayers right now. When your babies hurt you hurt ten times worse. I feel for your child as well. I am on an IViG therapy and use the most compassionate and professional company ever. The name is MedPro Rx. They offer financial waivers in conjunction with your insurance and in most cases there is NO OUT OF POCKET EXPENSE to you or your family. It is really up to our doctor to submit the correct data to your insurance company supporting the need for the medications, however, I would contact Tom Wells at MedPro Rx in North Carolina and ask for guidance. You can tell him I referred you. I have been receiving ivig Infusions every couple of weeks for many years and would never use another company. Please feel free to call me any time. May God bless your son and your family. Like I said I have never had to pay a penny for my medication in the Infusions. IVIG gets a bad rap often times. For me, it took time for the doctor to get the perfect balanced treatment and effective dosage, the fluids I needed along with the infusion, the medications I must take to prevent nausea and fluid retention and the timing of the flow of the infusion (I must have it delivered very slowly which is why the process takes all day for me). But bing pafgjent, conveying my symptoms accurately, keeping a journal and listening carefully both to my doctor and my body, it slowly and absolutely changed my life. Im still sick, need other medications, and have bad days. However I also have good days and have some quality of life back. Prayers and faith are infused at high doses and im hoping to overdose on those soon!!!

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    • Thank you, Mary. I can feel the prayers. Every scripture or inspirational picture or prayer that I receive, every shoulder j cry on, I feel Jesus comforting me. God bless you.

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    • Thank you! He has had two IVIG’s and is better. I was afraid he was dying. Our hearts were breaking. He has graduated to feeling tired and kind of like he has mono all the time. We expect each IVIG to get him feeling better and better. God has been so good to us. ❤️

      Liked by 1 person

    • Thank you, Eli. Drake is doing a lot better. He is a pretty sick little guy, but we are having his 5th IVIG in a couple weeks. So thankful! He has been able to hang with friends, start reading and doing fun stuff again, and has even gone to a few fun activities at school. He misses his friends and even school (ha!) so much, but he just has to heal right now!

      Liked by 1 person

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